Sunday, March 31, 2024
Oh, Baby!
Saturday, March 2, 2024
Friendships
Do you ever think about your friendships? I'm talking about real, meaningful, adult friendships that make you feel like a little kid, deserving of fun and the un-seriousness of being grown up. They're amazing!
When my husband's accident reframed our lives, we each lost many friendships. People either didn't know how to handle what we were going through, didn't like who we were becoming, or didn't like our availability - or lack thereof - and couldn't adjust to what we were comfortable with and what we weren't.
As the years have passed, my friendship circle has gotten smaller and smaller. In fact, the only friends I have left are those people I work with. Unfortunately, and sadly, even work friends have become so sparse that my husband and I joke that "work friends aren't real friends" because they never seem available outside of office hours and, frankly, some of them aren't people I'd invite over to my house for dinner.
This year, one of my goals is to make some friends. This is so hard to do as an adult! My priorities for friend selection these days are people I feel safe with - and I feel safe that they will protect my husband as I do. They are fellow caregivers and people who had to figure out how to walk through hard things like I did. Like I do.
Another priority is to nurture those friendships and to emphasize that they are important. In fact, friendships are high on the list of self-care. They rejuvenate; they connect; they help us identify with people who know our pain and struggles.
Friendship is the language that says, "I appreciate you" and "I want to connect with you, too."
My husband and I had brunch this morning with a new friend and her husband. I feel giddy! It was so nice to not explain why we needed a corner or an edge - someplace quiet in the restaurant. I could speak honestly about our experiences without feeling judged. When a faux pas happened - as they do and did - we laughed. We laughed every single time.
The feeling of friendship is like having a family member who brings unconditional love and acceptance. I like having a friend. I think I'll do it more often. 100% recommend.
Tuesday, January 2, 2024
Traditions After Neuro-Changes
Wednesday, November 1, 2023
Guilty Feelings
My husband was in an accident that caused his TBI several years ago. Since his injury, I have argued more with guilt than ever before in my life. I walk through "mom guilt," thinking I'm spending too much time paying attention to my husband instead of my children. My company provides "work guilt" when I have to travel, which requires my husband to rely on himself more often. I have "me guilt," where I don't/can't take the time to exercise/relax/get a haircut because I feel guilty for not being available for my husband and family.
Don't get me wrong: I've always owned a certain amount of responsibility for things over which I have no control! When I was a single mom of four children, I had the "my kids aren't dressed as well as the other kids" guilt. That morphed into their food and friend choices, which led to their college selections (to go or not to go). These days, I feel like everything that goes awry is my fault; however, this blame game is my own doing. Maybe it's because I seldom feel in control of my life and the events in and around it, or maybe because I wish things could be different.
Every day, I meet or hear about people living normal lives and doing all the right things when something happens to change the course of their journey. Suddenly faced with confusion and many questions, they reach out to those around them for guidance, comfort, and compassion to put all the pieces of their puzzling situation back together.
Even the simple concept of this type of giving can turn into guilt for me. Feeling the need to fix the world can be overwhelming and quickly turn into more than I can handle. My husband (frequently) says, "Guilt is overrated." I will work on letting go and accepting a little more of those things that are out of my control.
Do you ever struggle with things that are out of your control?
Friday, October 13, 2023
Have You Seen the Bread?
After my husband’s car accident, concussion-related challenges seemed to pop up daily. Dizziness and balance issues, constant ringing in his ears, and word-finding problems started immediately.
His PTSD kept us awake at night with terrifying dreams, and his
days were spent trying to figure out how to return to work in his newly
disabled body. The bills piled up, and everyday life items seemed like great
obstacles on our road to recovery.
As we both adjusted to our “new” life, we also faced the funny
quirks that came along with it.
Sometimes, he would say things that made absolutely no sense,
and we’d collapse into giggles – we still do this today. Sometimes, he would
say things that made me blush, and if we were in public, some of those things could
be inappropriate.
Usually, he didn’t realize that what he’d said could be hurtful
or embarrassing. He was crushed if I mentioned that something may not have been
the right thing to say. It was a fine line for me to walk – ignore bad behavior
and lose our friends and family or speak up and hurt his feelings.
During those first couple of years, we had a lot of mysteries in
our house. Things would go missing – lots of things, like forks and spoons. So
many utensils went missing that we emptied the silverware drawer during one
meal. We bought new forks and spoons several times during the first five years
after the accident.
Since we still had children in the house, they were usually
blamed for the missing utensils, drinking glasses, and for using the last roll
of toilet paper. When the kids grew up and moved away, and we were still
scratching our heads, I realized the problem was bigger than I thought.
Through it all, we have been able to laugh and find humor in the
day-to-day hurdles. Now and then we treat ourselves to coffee “out.” This isn’t
the kind of coffee we brew in our pot, but instead is made by someone else,
exactly how we want it. My husband calls it, “Fancy coffee.”
During one of these coffee outings, we splurged for frozen
coffees. Here in New England, there is a Dunkin’ Donuts every couple of blocks,
and my husband loves their Mocha Coolattas. (He also struggled with consuming
mass quantities of sugary treats soon after his accident, but that’s another
story.) If you’re not familiar with the drink, it’s made of frozen coffee, lots
of cream, chocolate syrup, and then it’s all blended to a slush. His always
came large and covered in whipped cream. To be clear, this isn’t a diet
beverage.
After buying our drinks that day, we took a drive out to the
beach. We talked about life, our kids, the news, chores around the house, and
sang along to the songs on the radio. Eventually, he reached for his Coolatta
and it was empty. Still driving, he stared at me for a long time. (My drink was
still mostly full.) I figured what the outcome would be, so I wasn’t surprised
when he finally said, “Did you drink my drink?!”
This same scenario has played out over the years with candy,
French fries, sodas, and coffee. He didn’t believe my answer, and we still
laugh about it.
With all of the changes his brain was going through and the
noise of a freight train in his ears, he was easily distracted all the time.
Random things showed up where they shouldn’t have. There was cheese in the
cabinet. The pepper shaker appeared in the fridge. Tennis shoes made their way
to the garage as if by magic.
While making his peanut butter sandwich one day for lunch, he
called me at work to say he couldn’t find the bread. I’m not normally a
sandwich-eater, but I was certain that we had a new loaf, purchased just a
couple of days prior. He was disappointed for lunch that day, and it was a
priority when I got home from work.
Sometimes, finding things that are put away in the wrong places
can be difficult. My first clue was that the toaster was on the counter. We
always cleaned it after using it and tucked it into a cabinet. When I looked
into the cabinet, there was the loaf of bread, ready to be eaten. Apparently,
after breakfast, he put the bread away where the toaster belonged.
At lunchtime, he didn’t connect the relationship between the
toaster being on the counter and the bread missing. He is able to realize that
this happens now and will usually retrace his steps to figure out what
happened.
A couple of years ago, during a time that nothing went as
planned and he was repeatedly frustrated, I started a game. An ordinary can of
turkey gravy turned up in the living room, next to the television remote. It
took him a couple of days to realize that it was there, but he surprised me by
asking, “Did I leave this here?” I felt terrible that he thought he actually
left it there, but he played the game. The next day, I found it in the
bathroom.
The day after that, he found it in his office, next to his
phone. We didn’t put it in obvious places, but we didn’t hide it either. It was
a way for us to make light of things. It’s not his fault that he’s sometimes
absent-minded. If I had as much going on in my body and the noise in my ears
that he does, I would be distracted too!
We’ve learned the benefits of routines, which build habits,
which create predictability. By the same token, if things are crazy busy, if we
have visitors, or even if we have a bad night’s sleep, the “normal” is a little
off-kilter and we make adjustments.
Today, he frequently is able to connect the dots, but I do still
find things where they don’t belong. Just this morning I heard, “We must be out
of bacon,” followed up by, “Found it!” The package of pre-cooked bacon he has
every morning for breakfast was in the freezer. Life certainly is interesting
with a brain injury!
Wednesday, October 11, 2023
Be Good to Yourself
About HOPE Caregiver Support
About Hope...
Why?
Caregiver Support
Anchors
Everyone knows what an anchor is. It is a part of a boat that holds it to a particular place so it doesn't float away. It is a suppo...
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Everyone knows what an anchor is. It is a part of a boat that holds it to a particular place so it doesn't float away. It is a suppo...
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Many of you know that my husband and I each have four children. My husband has four sons, and I have two sons and two daughters. After his...
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Do you ever think about your friendships? I'm talking about real, meaningful, adult friendships that make you feel like a little kid, ...




